Palvella is committed to working with Pachyonychia Congenita Project, a non-profit patient advocacy foundation, to achieve its mission to find effective treatments for PC.
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Since its founding in 2003, PC Project has connected PC patients, researchers and physicians throughout the world in a united effort to help those with PC. PC Project has an established patient registry of approximately 2,000 willing and dedicated PC patients (The International Pachyonychia Congenita Research Registry) and a formalized collaborative research group (The International Pachyonychia Congenita Consortium) that guides advancement of the most promising therapies for PC.

Palvella is working in close partnership with the Pachyonychia Congenita Project on the ongoing PTX-022 clinical program.


At PC Project, we are fighting for a cure, connecting and helping patients, and empowering research. And, we are successful because of the participation from the patient community. Thank you for joining with us as we move forward to success in these areas.
— www.pachyonychia.org
We are limited literally every single day in how much we can stand or walk
— PC Patient
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